We were hoping for some kind of a normal day. Not to be. We started the day with phone call from the on call oncologist. She said Callum had to quit taking the blood thinners. She said he is a specialized case and between a rock and a hard place. If he takes the blood thinners the brain may bleed again and that will kill him. If he doesn't take the blood thinners some could break off and go to his lung and kill him. She said he should just hang tight for today and they will figure out what to do with him. Then I had my first cup of coffee. Great start to the day! We are both quite scared - no doubt about it. We are really just wanting something normal. This past month has been quite a bumpy ride. Just when we think we have the kinks worked out, more comes along. I don't know how much more Callum can take - he is strong but this situation has him quite frustrated. On the positive side, he did a good job of keeping his arm elevated last night and some of the swelling went down. We just hope he can keep that under control until they come up with a new treatment plan for this. His regular oncologist is still away so we are dealing with the ones covering for him. At least it wasn't the other guy who had very little positive to say.
Well, it will be a quiet day. I should have some time to do a bit more organizing in the house and get some laundry done. In the middle of sitting and waiting for the bad things to happen, life goes on. I think we will have to have our hospital bags ready all the time - I had a hell of a time finding something to wear yesterday - the end of the week and laundry needed to be done. It is almost like getting ready to have a baby - you may have to go to the hospital any minute so make sure you have clean underwear handy!!!
Enough blabbering....time to get to work.
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