This is another one of our busy weeks. It seems that if it weren't for doctor appointments we might never get out! Or maybe it at least explains why we enjoy so much the comfort of staying home!
Today started with a trip to the lab to have blood drawn and a visit from the home care nurse just before lunch. Things seem to be fine. We didn't hear anything about the blood results so that should mean everything's a go for chemo! The nurse gave some suggestions on something to ask the Dr about that might help with mouth sores.
After lunch was a visit to the family Dr. for some prescription refills which also included increasing the dose for the long acting pain med (hydromorph contin). We sure hope he gets some better relief from the pain now.
Callum was tired today with all this activity. And we have tomorrow to get through yet!
Wednesday starts early - 8 am - for chemo. In the afternoon we need to be at the hospital at 2 for a CT scan at 3 pm. It will be another long day for him, although he might catch a nap at chemo! I am always a bit anxious before the tests, even when we don't find out anything that day! Based on our previous experiences, if the news is "good", we likely won't hear anything for about a week. If the news is not so good, we kind of expect a phone call by the end of the week. I think we are both a bit nervous this time round.
Thursday morning we see the neurosurgeon for follow up from the surgery. We believe there have been no issues so I am sure it will be a quick appointment!
Callum is feeling tired more often these days. I am really hoping that the pain meds will help him feel better and get some energy back - pain is so debilitating. His leg can get quite sore, and the mouth soresI think I might have to come to the realization that his good days now look different than they did before. Up until now I thought that if the pain could just get managed properly that he will have energy and be able to get out and about. Perhaps it will not be like it was before. He thinks he has lost a bit more weight and he is starting to look thinner. It can be worrisome. However, he remains positive, and will not give up - no matter what! As long as the doctors believe there is good reason to continue with treatment, he will do so. He has amazing drive, determination and commitment to beating this wretched disease!
If we get good news on the CT scan we will be asking about moving treatment to Medicine Hat. There may be a couple of hoops to jump through, but it would be worth it to have to have him travel so often.
And on goes the week - we'll head to Medicine Hat either Thursday or Friday, depending on weather, road conditions, and whether we have any short notice dr. appointments.
"If the essence of my being has caused a smile to have appeared upon your face or a touch of joy wtihin your heart, then in living I have made my mark." Thomas L. Odem Jr.
TTFN
Lorna
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