I am just sitting here working on burning some CD's for our son, J. It's wonderful that we have the technology, I just wish it worked faster!
We are very happy he came to visit this week - it was an unexpected, but extremely wonderful surprise. He has had to endure a lot of sitting around, but he has helped out quite a bit. Some things may seem easy and not a big deal to some, but having someone go out and pick up 6 things at the grocery store while I am at work makes a huge difference! And it gets Callum out, too. A double win for us. And we appreciate it so much.
My mom's 80th Birthday party was a huge success. My mom looked so beautiful in her new dress - something she deserves as she rarely treats herself to such things. The tea was really well attended - we even had to set up more tables! The family dinner was enjoyed by 38 of us. It was a very busy weekend, but well worth every minute.
Callum was pretty good for the weekend, except for a bit of a nasty day on the Saturday. He seemed to run a bit of a fever and was very fatigued. He spent from about 9 pm Friday night until Sunday morning in bed. Tylenol helped the fever and by Sunday he was new man! Thankfully he was able to go to the birthday party.
Things are getting a bit better with the leg. Callum has less pain in it now, although he is still not permitted to weight bear. That is such a hard adjustment for both of us! He still takes pain meds at night, but daytime seems to be much better. It is nice because he can get back to driving and getting out when his is feeling up to it.
We are kind of in a holding pattern with things. His oncologist is continuing with the FOLFIRI treatment for now. We will see what the CT scan and MRI show when they are done. The MRI is scheduled for Oct 2, and we are still waiting for CT date. He seems to be tolerating the FOLFIRI OK even with the different side effects. We are keeping our fingers crossed that it will stabilize the disease once more.
As we continue on with the journey, we must also start thinking about the issues that will come up when the disease can't be stabilized. We are wanting to spend more time in Medicine Hat in the coming months. That delightful little grandson of ours is just too hard to stay away from! I am working for an amazing board of directors and support whatever I need to take for time from work. It is nice to have such a nice, open relationship and their support. It helps us prepare in advance for when I may not be at work. Most likely we will plan to stay in Medicine Hat more often when we have exhausted all treatment options. We will have some other details to work out, but as time goes on we both are feeling the pull of being closer to family (right Cal?). We have also had many offers of help from people. Be ready folks, we will be starting to make a list! There are certainly things to do around here and times that help will be welcome, we just have to sort out priorities and also be sure to keep some time for ourselves.
Lots of days are up and down like a rollercoaster - it is often hard to keep up with my ever changing thoughts! This has been such a great week with J. here, that I am feeling like I have caught my breath a bit. September is such a busy time at work so the month will fly by. The scans will be done by early October and then we will reassess at that time and decide where the journey will take us.
The beauty of empowering others is that your own power is not diminished in the process. Barbara Coloroso
TTFN
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